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Signpost Book Reviews  Vol  8.1 2003

This page shows books which Signpost has reviewed. If you would like to become a Signpost book reviewer, please contact Signpost. For guidelines click here.

For a full list of published reviews click here.

The Experience of Alzheimer's Disease - Life Through a tangled Veil

Author: Steven R. Sabat
Publisher: Blackwell Publishers Ltd.
ISBN: 0631216669
Price: £17.99

As Sacks points out in his back cover comments, Sabat's book presents "each person as a unique subject, and emphasis is laid on what is strong and preserved, the ways in which the self and a sense of worth and meaning can be maintained".

This psychological perspective is befitting of a highly rated and established associate Professor of Psychology. He also has experiences of co-facilitating support groups for dementia sufferers, and that empathy is evident throughout this paperback.

Some assessors of Sabat's work have highlighted this as an existential perspective: consequently Wittgenstein and Laing rub eminent shoulders with Feil and Kitwood in the reference section. On browsing at the other names, one in particular caught my attention, 'Carter, Jimmy, US President'.

And those references perfectly highlight a major strength of this book, appearing in a specific context within Sabat's framework. As the pieces develop their themes, one recognises the benefits of accurately transcribed conversations and interviews with dementia sufferers.

To place all this in context, a discussion is recorded with a 68 year old Ph.D. holder, sub-headed 'His sense of loss with regard to reading', which exemplifies the three virtues that practitioners in dementia care use most regularly: patience, perseverance and lateral thinking.

It was by employing those three complimentary attributes that Sabat was able to piece together the information that identified Carter as the man being discussed - admittedly intuitive quasi-detective work also played a part, as did an awareness of recent history.

This is one example of many that could be chosen from a highly-readable and informative paperback, which helps the reader to understand the psychological issues behind Alzheimer's Disease.

Having progressed through seven chapters of keenly monitored observations and thought- provoking asides, Sabat concludes by considering the opinion that 'The Tangled Veil is also a Mirror'.

This final chapter draws together strands while widening the debate, by embracing many references to Laing's 'The Divided Self and elements of existential phenomenology. This study of the subjectivity of experience, aligned with the impact of a 'hypercognitive culture' appears to be of seminal importance to the key issues, and will possibly lead some to re-evaluate Laing's writings.

How often have those who have undergone Bradford Dementia Group 'Dementia Care Mapping' training been concerned about how to react to suggestions that dementia is, in some profoundly simplistic way, a return to childhood?

Sabat clarifies this pseudo-detraction magnificently: "There is a tremendous difference between the child and the (dementia) sufferer, who has lived decades of independent adult life which can be understood as existing in his or her 'personal present"' (page 323).

It is important that those for whom dementia care is either a personal or professional issue read this book. And then the final sentences:

"Our treatment of people with Alzheimer's Disease speaks of who and what we are, and so the tangled veil is truly a mirror. The challenge to all of us is outlined in the reflection" (page 340) will make perfect sense. Highly recommended.

Stephen Weeks BA (Hons.), RMN, Leeds

Burden of Sympathy
Author: David A. Karp
Publisher: Oxford University Press
ISBN: 01 19 512315 8
Price: £21.99 hb

‘Burden of Sympathy’ is the "second half of a story (which) began in a previous book, ‘Speaking of sadness’ ". The first book contained Karp’s account of his own mental health problems. Following the success of this book Karp received many requests for a book which detailed the experience of mental illness from the perspective of a carer. This book, ‘Burden of Sympathy’, is exactly that. It is constructed around over sixty extensive interviews with carers and also observation of a family and friends support group.

Karp has used these interviews to chart the major theme’s which run through each person’s individual account of the illness. He has described and discussed both accounts of how the carers and relatives themselves make sense of their situation and also provided his own overview of all the accounts. In particular he has covered the issues he found to be most pertinent to carers and relatives of the mentally ill, which he terms ‘the four C’s’ – cause, control, cure and care – and ‘surviving the system’. These include both practical information and personal accounts.

In ‘Burden of Sympathy’ Karp has focused on the changing nature of the relationships between members of a family when one member becomes mentally ill. Specifically, Karp highlight’s the need for members of the family to draw boundaries between themselves and the ill person in order to protect their own health and emotions. Without a certain amount of distance it becomes impossible to continue caring he suggests, and convincingly illustrates.

This is a fascinating book, made more so by the extensive use of case studies and quotes. It provides a valuable insight into the lives of people who love and care for someone with a mental illness, both for people who have never had that experience, and also for people who have had or are currently undergoing that experience. The easy to understand format and language adds to the appeal and hugely increases the accessibility of the book. It is ideal if you are interested in a book written from an individualistic perspective.

However, this is not the right book for someone looking for a scientific analysis, nor does it claim to provide any definite answers. It is also written by an American, so whilst still providing valuable information, some of it (especially the section on ‘surviving the system’) is perhaps not as relevant outside of the USA. But don’t let that put you off – this is an engaging and valuable piece of work that I would highly recommend.

Emma Cooper, Placement Student, Cardiff

Health Anxiety : Clinical and Research Perspectives on Hypochondriasis and Related Conditions
Author: Asmundsen, Taylor and Cox.
Publisher: John Wiley & Sons Ltd.
ISBN: 0471491047
Price: £27.50

This hefty textbook is a collection of essays by a wide range of experts from around the World but with a focus on the Americas (and consequently has an emphasis on the DSM categories of mental illness rather than the ICD version.) There are however very useful contributions from British experts.

There is little doubt that the book is relatively hard reading although it is more profitable and satisfying to delve into specific chapters of which the most useful are those which focus on specific liaison psychiatry issues such as pain , chest discomfort and hypochondriasis. A chapter looking at health anxiety in the elderly is particularly helpful too in looking at the specific needs of this patient group.

One’s distinct impression of the book (and this is slightly off-putting for the less academically inclined reader) is that of research in this difficult area. Interestingly suggestions for the future direction of research in these areas ranges from categorical concerns about the classification of health anxiety (for reasons of "best fit" treatment approaches) through to the science of genetics and its possible impact on understanding anxiety.

Very practically the book is an excellent resource for those of us encountering health anxiety of various kinds in the patients we serve. It is recommended as a textbook for reference as and when needed coupled with an excellent resource for those interested in research in this difficult area.

Dr Clive Morgan, SHO in Psychiatry, Hull and East Riding Community NHS Trust.

Keeping in touch With someone who has Alzheimer’s
Author: Jane Crisp
Publisher: ASUMED Publications
ISBN: 0 9577988 2 2
Price: £12.95

This book is written from a personal and professional perspective. Dr Crisp, recently retired as a lecturer in communication, media and women’s studies at the Griffith University in Brisbane, Australia. When her mother, who lived in New Zealand, developed Alzheimer’s disease she was determined to use her insights into the academic world of communication to bridge the potential gap that may develop. She had always had a very close relationship with her mother and was determined to maintain this.

The book is written with gentle humour and a refreshing honesty that makes it easily readable, leading you on a journey of discovery of trying to understand the world of dementia as a sufferer and as an observer. It never becomes sentimental but always offers an alternative explanation as a means of creating a different framework.

Dr Crisp does not have a medical background and this helps to retain the emphasis on the individual in their cultural and social setting. There are eight chapters clearly identifying the areas they will cover; giving a list of topics at the beginning and a summery at the end. Each chapter keeps the focus on the person with dementia and often gives "real"" examples of what is being discussed. Dr Crisp uses her own personal experiences with her mother but also underpins this with examples of current good practise from other countries. This use of other sources of practise provides a wider context to the issues discussed and broadens the appeal of the book.

As a practising Occupational Therapist I found this book informative and at times a humbling experience. In a busy world we may forget to stop and really take the time to listen and understand what is being said. This book reminds professionals to do this more often and offers hope encouragement to carers that it is possible.

I would thoroughly recommend this book to professionals and carers as a book to read and share insights together.

Diana Sims, Occupational Therapist, Bristol

 

 

 

Up ] [ Book Reviews 2003 Vol 8.1 ] Book Reviews 2003 Vol 8.2 ] Book Reviews 2003 Vol 8.3 ] Signpost book reviews Vol 9.1 2004 ] Signpost book reviews Vol 9.3 2005 ] Signpost book reviews Vol 10.1 2005 ] Signpost book reviews Vol 10.2 2005 ] Signpost book reviews Vol 10.2 2005 Page 2 ] Signpost book reviews Vol 10.3 2006 ] Signpost book reviews Vol 11.1 2006 ] Signpost book reviews Vol 11.2  2006 ] Signpost book reviews Vol 11.3 2007 ] Signpost book reviews Vol 12.1 2007 ] Signpost book reviews Vol 12.2 2007 ]

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Signpost Journal produced by Cardiff and Vale NHS Trust
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Home  Welcome  About us  Signpost contents  Sitemap  Search  Subscriptions  Writing for Signpost  Back issues  Links Book reviews  DSDC  Advertisements


 

Signpost Journal produced by Cardiff and Vale NHS Trust
in association with Dementia Services Development Centre Wales.
Tel. 029 2033 6073. Fax. 029 2033 6385 E-mail; Signpost
Copyright Cardiff and Vale NHS Trust ISSN 138-4345    Webmaster email